hlhsdad.wordpress.com In December 2012, Nolan Perez was born with a serious congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS). Nolan will require several surgeries and therapy. His name means “fighter” and he’s definitely living up to that name! Nolan has been through two of three open heart surgeries – known as the Norwood and the Glenn. His parents, Chris and Bekah Perez, support Nolan through his journey with HLHS in addition to parenting two other chil

addler99.blogspot.com At 5 weeks old Madelynn was diagnosed with Coarctation of the Aorta, a life threatening Critical CHD. Her Aorta was growing straight up and not curved behind the heart, she had a hole in her heart and the Aorta needed an extended repair requiring Open Heart Surgery (OHS) first thing the next morning. There were some extended tests required to prepare for the next day and the family would walk over to hospital shortly thereafter. As the tests progressed t