Our first child, Madison Rose, was diagnosed at our 20 week ultrasound with the Congenital Heart Defect (CHD) Hypoplastic Right Heart Syndrome (HRHS). The doctors remained positive and Madison was born on June 17, 2016 at Morgan Stanley Children’s Hospital at NY Presbyterian. After receiving her first open heart surgery, almost 2 weeks after birth, she was listed for heart transplant. She was one day shy of her 12 week birthday when she passed away suddenly on September 8, 20